The EHDEN standards require that the data is collected and stored using the same language, terminology, and models. This way, the data can be used globally and between different countries and will be easy to locate. The EHDEN network already has over 200 million patient records and it brings together 61 partners from 16 countries.
EHDEN is part of OHDSI, The Observational Health Data Sciences and Informatics collaborative with researchers from six continents, 30 countries and 600 million patients from all over the world. The data model created by OHDSI is based on the Common Data Model (CDM) by OMOP, The Observational Medical Outcomes Partnership.
”The data can be collected and stored in many different ways, but its further use as well as data recognition and quality assessment can be challenging. This is why the standardized models are important,” says Lisse-Lotte Hermansson, Chief Scientific Officer at BCB Medical.
Standardized data storage model benefits patients and scientists
As the Nordic market leader in gathering and analyzing clinical data, BCB Medical aims to produce data with optimal usability.
Transitioning to the EHDEN model benefits the patients. With homogenous data, it is easier for healthcare professionals to retrieve information that supports their work when treating their patients. BCB Medical registries are already used by more than 10 000 healthcare professionals.
A standardized storage model also benefits science, as it increases the openness in data usage. The data collected according to the EHDEN standards is easily utilizable in research, and data from a single study can be compared to a bigger data set.
With larger studies, there is often a need for homogenous additional data collected in a standardized way.
“On a global level, the data collected in Finland is unique, because it is already in a very structured format. For us, transitioning to the EHDEN model is just the final touch,” says Hermansson.
“We are very happy to be part of such a fine network. International cooperation is very important,” Hermansson concludes.
Chief Scientific Officer